Families' page

Getting your loved one home can be an enormous relief, but it can also raise a number of questions about how much help they might need, how able you feel to support them physically and emotionally, what kind of help you might be able to get for yourself,how long they might take to make a full recovery and how you might cope financially if you need to take time off work. In this section, we have provided some practical information, advice and links to potential sources of help with everyday living, money and emotional support.

 

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Web Link: Attendance Allowance

Attendance Allowance is a benefit for people aged 65 or over who need help with personal care (washing,dressing or eating, for example).Some patients need this type of help in the first few weeks and months after they get home.This link will take you to the NHS Choices web page, which will tell you more about what this allowance is, who is eligible and how to claim it.

External Video: Bob describes his long term recovery

In this short video, Bob (a former Intensive Care patient) talks about his recovery over the months and years since his accident.

Web Link: Borrowing a wheelchair

Although you may not have been issued with a wheelchair when you leave hospital, some people continue to have problems with walking after they get home.It might be helpful to borrow a wheelchair "just to get out of the house", if you're not sure how far you can walk, you tire easily or have lost your confidence a little. This link will take you to the webpage of the British Red Cross, who may be able to lend you mobility equipment.If you type in your postcode, they can...

Web Link: Care for Carers (Lothian)

This link will take you to the Care for Carers website, which is a voluntary organisation based in Lothian. They offer support groups for carers,open days (twice yearly), advice and support with stress management and a newsletter, amongst other things.

Web Link: Carer support in East Lothian

This link will take you to the Carers of East Lothian website. They focus on supporting carers so that they can continue to care for others. They can provide anything from a bit of practical advice when needed, right through to much more support for carers who are struggling to cope with the physical and emotional demands of caring for someone on a full time basis. They offer: carer support; help with benefits, fuel bills and money issues; short breaks from caring; days out; support...

Web Link: Carer Support in Edinburgh

This link will take you to Edinburgh City Council's Carer Support page.If you care for someone who is ill, frail or disabled and you are unpaid, they can offer advice and information on a great many issues including your rights as a carer; carers' assessment and support plans; local services; breaks from caring; medical conditions and medication and looking after yourself. They can also support you by referring you to other groups and

Web Link: Carer support in Lothian (VOCAL)

This link will take you to the VOCAL (Voice of Carers Across Lothian) website. Their website offers advice, information and support on a wide range of practical, financial, legal and emotional issues.

Web Link: Carer support in West Lothian

Carers of West Lothian is a voluntary organisation that provides information and support on a wide range of issues to unpaid carers. When you first get in touch, they will send you a free Carers Information Booklet, which is a comprehensive guide to services in West Lothian. You can contact them via their website, by phone or by visiting their centre in Livingston Carers of West Lothian, Sycamore House, Quarrywood Court, Livingston EH54 6AX Phone: 01506...

Document: Carers Allowance Factsheet (Carers UK).pdf

This factsheet has information on what Carer's Allowance is, who can get it and how to claim it. (You can claim online using the link we've provided).

Web Link: Carers' Assessment (NHS Choices)

When someone ends up Intensive Care, close family and friends are also affected. They play a very important part in the patients' recovery after they go home.Given the importance of their involvement, the government has ensured that they have certain rights that, by law, must be met. Close family or close friends are often called "carers" by health and social care services, and most have a legal right to an assessment of their own needs. That includes things like...