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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: Age Scotland (advice for carers)

This link will take you to the Age Scotland website.They provide a fantastic range of information and advice on many different issues such as housing, legal issues, saving money on your energy bills, eating well and common health conditions. Much of this is available in free leaflets that you can download or print off. Part of their services include an Information and Advice team. Their staff and volunteers specialise in answering enquiries from older people, their carers and...

Web Link: Ageing well activities (Edinburgh Leisure)

This link takes you to the webpage of Edinburgh Leisure and their section on Ageing Well and Active Lives. They offer a fantastic range of activities for people over 50, including allotment gardening, buddy swimming, chair based exercises, dancing, photography, indoor curling, singing and walking.Why not give it a go?

Web Link: Asking for equipment after you get home

You may find, after you get home, that you need some simple equipment to make everyday life a bit easier. That might include equipment to make it easier to wash, dress, use the bathroom and move around. This link takes you to Edinburgh City Council's web page. Some of the equipment they offer is free of charge and can be installed for you. You can use this web page to see what types of equipment are available and you can ask for it using their online form (although you will have...

Web Link: Attendance Allowance

Attendance Allowance is a benefit for people aged 65 or over who need help with personal care (washing,dressing or eating, for example).Some patients need this type of help in the first few weeks and months after they get home.This link will take you to the NHS Choices web page, which will tell you more about what this allowance is, who is eligible and how to claim it.

Web Link: BBC news on the lasting mental health impact of ICU

This is a very short but relevant article from the BBC’s health page, outlining the findings from a recent UK study into the mental health issues some patients face after Intensive Care.

Web Link: BBC News page on support after patients go home

This is a very short but interesting and relevant article from the BBC’s health page. It outlines a recent UK study involving over 300 patients, the physical problems they faced and wide variation in support they received after they got home.

External Video: Bob describes his long term recovery

In this short video, Bob (a former Intensive Care patient) talks about his recovery over the months and years since his accident.

Web Link: Care for Carers (Lothian)

This link will take you to the Care for Carers website, which is a voluntary organisation based in Lothian. They offer support groups for carers,open days (twice yearly), advice and support with stress management and a newsletter, amongst other things.

Web Link: Carer support for ethnic minorities

This link will take you to the website of an Edinburgh based organisation which can help family members or carers from ethnic minorities to access the support and services they need.

Web Link: Carer support in East Lothian

This link will take you to the Carers of East Lothian website. They focus on supporting carers so that they can continue to care for others. They can provide anything from a bit of practical advice when needed, right through to much more support for carers who are struggling to cope with the physical and emotional demands of caring for someone on a full time basis. They offer: carer support; help with benefits, fuel bills and money issues; short breaks from caring; days out; support...