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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: Carer Support in Edinburgh

This link will take you to Edinburgh City Council's Carer Support page.If you care for someone who is ill, frail or disabled and you are unpaid, they can offer advice and information on a great many issues including your rights as a carer; carers' assessment and support plans; local services; breaks from caring; medical conditions and medication and looking after yourself. They can also support you by referring you to other groups and

Web Link: Carer support in Lothian (VOCAL)

This link will take you to the VOCAL (Voice of Carers Across Lothian) website. Their website offers advice, information and support on a wide range of practical, financial, legal and emotional issues.

Web Link: Carer support in West Lothian

Carers of West Lothian is a voluntary organisation that provides information and support on a wide range of issues to unpaid carers. When you first get in touch, they will send you a free Carers Information Booklet, which is a comprehensive guide to services in West Lothian. You can contact them via their website, by phone or by visiting their centre in Livingston Carers of West Lothian, Sycamore House, Quarrywood Court, Livingston EH54 6AX Phone: 01506...

Web Link: Carers' Assessment (NHS Choices)

When someone ends up Intensive Care, close family and friends are also affected. They play a very important part in the patients' recovery after they go home.Given the importance of their involvement, the government has ensured that they have certain rights that, by law, must be met. Close family or close friends are often called "carers" by health and social care services, and most have a legal right to an assessment of their own needs. That includes things like...

External Video: Common issues after getting home

In this video, Anne talks about her role as a follow up nurse at Ninewells Hospital in Dundee. She sees patients after they've been discharged from hospital and talks about the common issues patients and families face during this time.

Web Link: Community Care Assessment

If you or the person you're looking after has difficulty with personal care (washing and dressing, for example), you could consider getting support from social services by having a community care assessment of your needs.The assessment looks at what type of services are needed. This might include a range of things, from from aids and home adaptations to visits from care workers or residential care.

Article: Counselling study in NHS Lothian

Counselling for patients and families after Intensive Care: the CONNECT study (NHS Lothian) What is this study about? A number of previous studies have shown that patients and family members can suffer from anxiety and depression (feeling low) after Intensive Care. Some also experience upsetting memories or “flashbacks”. Losing a loved one in Intensive Care can have similar effects. We would like to find out if counselling helps. In this study, we will offer...

Web Link: Disability Snowsport UK

This link will take you to the Disability Snowsport UK Homepage, which has links to local groups. Disability Snowsport UK is a people-centred organisation with a unique sense of purpose: that anyone regardless of their disability can take part in and enjoy the thrill of snowsports. They are a membership organisation, and welcome anyone of any levels of skiing and fitness. They cater for complete novices to snowsports all the way to elite athletes.

Web Link: Driving

This link will take you to the web page of NHS Lothian's Driving Assessment Service. They offer an assessment service for people who want to start, resume or continue driving after an illness or injury. They are based at Astley Ainslie Hospital in Edinburgh, but can offer assessments in Dundee, Aberdeen, Inverness, Paisley, Irvine and Dumfries. Contact details are provided.

Web Link: Edinburgh Crisis Centre

This link will take you to the Edinburgh Crisis Centre. They provide support to those caring for people with mental health issues in Lothian.They offer a freephone helpline, face to face support and the opportunity to stay at their Centre for up to 7 nights. Their freephone number is 0808 801 0414 You can also text them on 0797 442 9075